Developing the Pregnancy Sickness and Hyperemesis Gravidarum Community.

Saturday 2nd May 2020

Pregnancy Sickness Support welcomes current and future volunteers to our fifth biennial conference.

This conference aims to be a training day for volunteers enabling skills and knowledge development alongside online networking and sharing opportunities

Further information from discussions at conference

Domestic Violence:

If you are worried the sufferer you are supporting is in a Domestic Violence situation please let the PSSHQ team know as soon as possible.

The sufferer can reach out for help from police by calling 999 and then press 55. They can also go to their local branch of boots and use the private consulting room to call for help.

You can find more information in the links below

https://www.womensaid.org.uk/the-survivors-handbook/im-worried-about-someone-else/

https://www.thisisnotanexcuse.org/domestic-abuse/friends-and-family/

https://www.ourwatch.org.uk/sites/default/files/documents/2020-01/SY0085_NHW_DomesticAbuse_Leaftlet_FINAL.pdf

https://loverespect.co.uk/

 

GDF15 Information:

The significance of GDF15 for Hyperemesis Gravidarum

Does the placenta and appetite hormone GDF15 cause NVP & HG?

 

Preparing for an HG pregnancy:

https://www.pregnancysicknesssupport.org.uk/get-help/resources-get-help/

 

How to get involved in the Bio-Resource Project:

‘Women who have experienced severe hyperemesis in the last 3 years can put themselves forward for the study by emailing research@pregnancysicknesssupport.org.uk 

More info can be found here

 

Service Development:

Additional people that can be contacted are listed below - 

  • Transformational Lead for Maternity Services within CCG
  • Patient Experience Manager within Clinical Commissioning Group
  • Patient Experience Managers
  • Perinatal Mental Health Teams
  • Maternity Voices Partnership
  • Maternity Matron
  • GP Patient Participation Group

 

Patient and Public Involvement in Research:

Further to your involvement with the PSS PPI group you can also contact the R&D Department within your hospital who will direct you to the PPI group at that hospital. 

 

Links further information you can use to support your fundraising posts:

 
 
Data Protection information to consider when downloading texts/communication with sufferers:
 
Please do not use third part apps to download text messages with sufferers as we do not have permission from the sufferer to share their information with these sites/apps.
Instead please summarise your contacts and enter into the contacts box in the sufferers account on the website.
 
Conversations via What's App can be downloaded - if you use this method please ensure you delete this document completely from all devices once you have updated the contacts section of the website.
 
 
 

85%

85% of pregnant women have two episodes of nausea per day.
30%

30% of pregnant women in paid employment need time off work due to NVP.
70-80%

Nausea & vomiting in pregnancy (NVP) is very common, on average it affects 70-80% of pregnant women to a greater or lesser extent.