The PSS Team
The PSS Team
Pregnancy Sickness Support is predominantly a volunteer run organisation. The Board of Trustees take responsibility for the day to day running of the Charity and the volunteer network provide national support to sufferers. We have two paid members of staff; A Support Coordinator and a Fundraising and Engagement Administrator.
It is our hope to secure funding which will allow us to develop the Charity further and secure the financial future with formal funding and sponsorship.
In addition to the Trustees we have a board of medical professionals who assist with research and advise on medical and treatment issues.
Furthermore we collaborate with various other organisations to increase service development, collaborate on research and provide international support to sufferers and their families.
We have over 350 volunteers across the UK who provide support to women the length and breadth of the country as well as supporting our work via fundraising, social media support and volunteering their specific skills.
Patrons of Pregnancy Sickness Support
Baroness Julia Cumberlege CBE was Parliamentary Under-Secretary of State for Health from 1992 to 1997. She founded Cumberlege Connections Ltd in 2003 and Cumberlege Eden and Partners in 2013. Both Companies specialise in training and consultancy to the health sector. Julia started her career in Local Government, as Leader of the Lewes District Council and Chair of Social Services for East Sussex. She has served on many public bodies and has produced two reports for the Government. She is an Honorary Fellow of five Royal Colleges and has Honorary Degrees from five universities.
Baroness Cumberlege is currently Chair of the National Maternity Review and has a wealth of experience in healthcare leadership. She has chaired working parties for the Royal College of Physicians – which led to the ‘Doctors in Society’ (2005) and ‘Future Physicians: Changing Doctors in a Changing World’ (2010) reports. She is a Patron of the National Childbirth Trust and Vice President of the Royal College of Midwives. In the 1990s she also led a major review on maternity care, producing the ‘Changing Childbirth’ report for the Department of Health.
Dr Tony Barnie-Adshead (Founding Trustee) is a retired GP in Nuneaton. He has shared research into various aspects of pregnancy sickness and hyperemesis since the mid 1960's. His interest started when a lady with severe symptoms said that it had been such a bad experience that she didn't want to contemplate having another pregnancy and didn't medical science know what was causing it? He has spent the last 45 years researching the answer to that question. Following his wishes to retire as Trustee Tony has been made Patron.
Trustees of Pregnancy Sickness Support
Mrs Caitlin Dean (Chair) is a Registered General Nurse specialising in hyperemesis gravidarum. She has suffered three times with Hyperemesis Gravidarum and is now undertaking a PhD at Plymouth University to further the research efforts for HG. In addition to her research Caitlin spends her time providing education for healthcare professionals and writing extensively for both the medical and lay press and writes the popular Spewing Mummy blog. Her work for PSS led to the 2015 Third Sector Award for Charity Chair Person of the Year and a Nursing Times Award for Inspirational Nurse Leader. Her savvy media strategy has ensured that hyperemesis gravidarum has has a consistent and powerful presence in the UK media over the last four years. She has two boys aged 9 and 7 and a girl aged 5. They live on a sheep farm in Cornwall.
Dr Roger Gadsby (Vice Chair and Founding Trustee) who has just retired as a GP in Nuneaton and now works for five sessions a week as an Associate Clinical Professor at Warwick Medical School, University of Warwick. He has had an interest in pregnancy sickness symptoms since he joined the same practice as Dr Tony Barnie-Adshead in 1979. Together they have carried out research and published papers and articles on pregnancy sickness symptoms. Roger was awarded an MBE in 2009.
Ms Caroline Pratt (Founding Trustee) is the daughter of Dr Tony Barnie-Adshead. She suffered from hyperemesis gravidarum (severe pregnancy sickness) and was lucky to benefit from the knowledge of her father. She says "It is difficult for people who don't suffer to understand how unpleasant it can be. I think that the work of this charity is important as it is providing support and information for sufferers and carers".
Mrs Susie Nicholas is a solicitor working as a Professional Support Lawyer at a commercial law firm in Birmingham. She has two young children and suffered from hyperemesis gravidarum during both pregnancies. She only became aware of Pregnancy Sickness Support after the birth of her second child, which is why she is keen to increase awareness of hyperemesis and the charity so that other sufferers can get the support and treatment they need. Susie wrote the information on employment rights on the PSS website, has lectured student midwives on HG and PSS and was instrumental in the launch of the charity's fundraising initiative, the Big Brew. She has also had articles published, and writes a blog about her involvement with PSS called Diary of a Charity Chick.
Mrs Emma Edwards is a trained Primary School Teacher who suffered from Hyperemesis with her son. She started volunteering for PSS when Adam was 7 weeks old. Emma found the isolation of hyperemesis extremely difficult and as a result helped to develop the PSS Forum in order for sufferers to share their experiences. She has helped raise awareness of the condition by producing the HG Awareness Day 2013 video and Survivors Annual. Emma’s blog, Adventures of Adam, provides a variety of play activities suitable for women suffering from hyperemesis to entertain their young children.
Dr Margaret O'Hara has a background in physics teaching and medical physics research. She is currently the Patient and Public Involvement and Engagement in Research Lead for University Hospital Birmingham based at the Institute of Translational Medicine. Having observed several relatives suffer with Hyperemesis Gravidarum, she conducted her own research on treatment protocols before becoming pregnant and found a clinician who prescribed antiemetics as soon as her HG started. After her pregnancy with her daughter, in 2010 she set up the website www.pregnancysicknesssos.co.uk to disseminate the information that she had gathered and to assist other women to obtain treatment. Using the website, she has conducted surveys of women's experiences of HG in the UK. She has been a volunteer for PSS since 2011 and is a co-author on the Royal College of Obstetricians and Gynaecologists clinical practice guidelines for Nausea and Vomiting of Pregnancy and Hyperemesis Gravidarum.
Dr Shazia Zafar is a research scientist working at the University of Birmingham. Her current research investigates a novel method which could be used to assess and manage hyperemesis more effectively by breath, in place of or complementary to the current urine dipsticks. She came across PSS only after having suffered severely from hyperemesis herself twice. After finding out the wonderful work the charity does to support women she became a volunteer for PSS in order to help and pass on her knowledge and experience.
Dr Manjeet Shehmar
Dr Gillian Ostrowski is a GP Principle in a large central London practice. She has served as Associate Medical Director for Wandsworth since 2011 and became one of the Associate Medical Directors for NHS England, London area in 2013. Gillian also previously held positions on the Executive Committee of the Battersea GP Federation and an elected post on Wandsworth London Medical Committee for five years.
Gillian became aware of PSS whilst pregnant, suffering Hyperemesis gravidarum during all of 3 of her pregnancies. She is committed and passionate about empowering patients and medical professionals alike with knowledge of this physically and psychologically debilitating illness.
Dr Yusra Khan (MRCGP, MBChB Hons University of Bristol, Postgraduate certificate in Primary Care awarded with Distinction) is a GP at a large practice in South Gloucestershire. Yusra became aware of PSS when she was pregnant with her baby boy now 2 years of age. Using her first-hand experience and professional knowledge of this relentless condition, she hopes to help sufferers access optimal care and treatment as well as educate primary care clinicians regarding the diagnosis and management of Hyperemesis Gravidarum.
Mrs Mo Cleland is a practising midwife and health visitor in the South West of England. Mo has not personally experienced HG however she has experience of providing both midwifery and health visiting care for those who are or have suffered with HG and understands the impact the condition has on the whole family and the lived experience of pregnancy. Having worked in the NHS for over 20 years in addition to her clinical work Mo has a wide experience of service development, debriefing and dealing with complaints where care sadly has not reached the standards women expect. Passionate about ensuring all women have access to high quality, research based, up to date care Mo is delighted to have joined the board of trustees.
Staff on the PSS team
Senior Support and Development Coordinator
Karen Lodge has been working in the third sector for the past 11 years and has detailed knowledge of administration, marketing, event coordination and volunteer management. >Karen has a passion for women’s issues and conditions relating to childbirth, Karen is a trained breastfeeding peer supporter. This experience led her to pursue this role with PSS.
Support and Development Coordinator
Leonie Searle has a background of Youth and Community work having both worked and volunteered for various community projects around Cornwall.
She studied for a foundation degree in Community Studies (development and youth work). She has a passion for supporting people through difficult transitions and will also be looking at training and developing our network of volunteers around the UK.
Medical Advisory Board and Research Team
In addition to the doctors and nurses on the board of trustees the charity also has a number of the UK's leading experts involved in the the charity's operation.
While not involved in the day to day administration the following experts are available to provide insight and expertise in their particular fields to ensure the information the Charity provides is gold standard. Furthermore they are involved in the charity's research direction and service development advice.
Prof Catherine Nelson -Piercy - Professor of obstetric medicine and consultant obstetric physician, Guy's adn St Thomas' NHS Foundation Trust
Dr Marjory Maclean - Consultant Obstetrician, Ayrshire Maternity Unit
Prof Roy Taylor - Professor of Medicine and Metabolism Director, Newcastle Royal Infirmary
Dr Brian Swallow - Chartered Health Psychologist and a qualified Social Worker
Dr Catherine Sykes - Chartered Psychologist
Dr Gina Harrap - Dental Surgeon, member of the Faculty of Dental Surgery of the Royal College of Surgeons
Pregnancy Sickness Support recognises the need for inter-organisational working to further the agenda for pregnant women suffering nausea and vomiting in pregnancy and hyperemesis gravidarum. Since our inception we have worked hard to establish good relationships with a number of professional bodies, other charities and organisations with mutual aims. Here are some of the organisations we are proud to partner with.
The Hyperemesis Education and Research Foundation is our sister organisation in America. Working to further research and education into the extreme end of the NVP spectrum we collaborate particularly on coordinating international support for sufferers.
The Pregnancy & Medicine Initiative is an independent, nonprofit organization that aims to raise awareness and help address the information vacuum concerning the use of medicines and medical treatment in pregnancy. They serve as an enabler, by connecting individuals, groups, and initiatives across the field of healthcare. They aim to bring this issue to the top of the healthcare agenda and facilitate the conversation around regulation, ethics, research and care.
Birmingham Women's Hospital is paving the way in excellent hyperemesis care in the UK. Their IV day unit sets a high standard which we hope one day to see across the UK. Consultant Miss Manjeet Shehmar sits on our Medical Advisory Board and works with us to further the research and service development aspects of the charity.
Nottingham University Hospital have partnered with us via their Better for You project in order to improve hyperemesis care across the county. Together we are establishing an IV day unit at the Queen's Medical Centre site as well as implementing a Primary Care treatment guideline for GP's in the county. There is a longer term ambition to establish an IV at Home service for the more rural areas of the county and support in the area will be coordinated effort between the charity and the hospitals.
Thanks go to NUH for the sample GP and Hospital guidelines on this website.
The British Pregnancy Advisory Service (bpas) is the UK’s leading independent reproductive healthcare provider. bpas supports reproductive choice by providing contraception and abortion services, primarily on behalf of the NHS. We are collaborating with them to ensure women suffering hyperemesis gravidarum have received full access to treatments, information and support before opting to end an otherwise wanted pregnancy.
"You've been there for me and I've not felt alone."
Did you know?
Hyperemesis Gravidarum is not a normal part of pregnancy but a serious and dangerous complication of pregnancy.
You are not aloneIf you think you are suffering from HG please call us for support on: 024 7638 2020
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Volunteer Peer Supporters work with sufferers on a 1-2-1 basis via text, email, phone or sometimes face to face throughout their pregnancy while symptoms persist
"It was so comforting to speak to someone that listened to me, understood my symptoms and most importantly made me feel like I wasn't overreacting."